research The development of a care model for thalassemia children PhonPhisai Hospital NongKhai Province. The development of a care model for thalassemia children Phon Phisai Hospital Nong Khai Province

Abstract

        Thalassemia is a blood disease caused by abnormalities in red blood cells, leading young patients to suffer from illness and complications arising from treatment. It affects both the bodies and minds of patients and their families. This action research aimed to Developing a care model for thalassemia children of Phon Phisai Hospital Nong Khai Province. The sample comprised 30 pairs of patients and parents of children with thalassemia, selected purposively. Data were collected using the knowledge questionnaire and behavior of caring for children with thalassemia patients and service satisfaction questionnaire. The data were analyzed by using descriptive statistics and Wilcoxon matched pairs signed ranks test statistics and content analysis.
          The results showed that the care model for patients with thalassemia as follows: 1) a specific thalassemia clinic 2) Modify service procedures so that blood transfusions for patients can be completed on the same day 3) a guideline. After the development of the model, the sample group had higher scores on knowledge, behavior, and satisfaction than before the implementation at the statistical significance level of 0.05. The suggestion is to establish a learning center for pediatric thalassemia patients, preparing enough places and beds to receive blood transfusions for patients. These measures will help reduce waiting times for services and, in turn, increase satisfaction.